Asian Nursing Research
Volume 4, Issue 1 , Pages 1-9, March 2010

Development and Validation of a Scale for the End of Life Caregiving Appraisal

  • JuHee Lee, PhD, RN

      Affiliations

    • Assistant Professor, Nursing Policy Research Institute, College of Nursing, Yonsei University, Seoul, Korea
    • Corresponding Author InformationCorrespondence to: JuHee Lee, PhD, RN, Assistant Professor, Nursing Policy Research Institute, College of Nursing, Yonsei University, 250 Seongsanno, Seodaemun-gu, Seoul 120-752, Korea
    • ,
  • Ji-Soo Yoo, PhD, RN

      Affiliations

    • Professor, Nursing Policy Research Institute, College of Nursing, Yonsei University, Seoul, Korea
    • ,
  • Tae-Hee Kim, RN, MSN

      Affiliations

    • Unit Manager, Division of Nursing, Severance Hospital, Seoul, Korea
    • ,
  • Jeong-In Jeong, RN, MSN

      Affiliations

    • Team Manager, Division of Nursing, Severance Hospital, Seoul, Korea
    • ,
  • Soo-Jung Chang, RN, MSN

      Affiliations

    • PhD Candidate, College of Nursing, Yonsei University, Seoul, Korea
    • ,
  • Dukyoo Jung, PhD, RN

      Affiliations

    • Assistant Professor, Division of Nursing Science, College of Health Sciences, Ewha Womans University, Seoul, Korea

Received 12 November 2009; received in revised form 12 November 2009; accepted 19 January 2010.

Article Outline

Purpose

End-of-life caregiving experiences can be complex. Family members experience physical and mental suffering as they anticipate their impending loss. Healthcare providers should be able to provide good quality of end-of-life (EOL) care and support for primary EOL caregivers. Studies have highlighted the role of healthcare providers providing information in the EOL situation to caregivers of chronic disease patients. This has resulted in the development of the End-of-life Caregiving Experience Appraisal Scale (EOLCAS) presented in this paper. The purposes of this study were to develop a scale that can evaluate the experiences of EOL caregivers, and to test the reliability and validity of this scale.

Methods

The scale domains were derived from systematic review of 35 relevant studies. We then examined its content validity with nurse scholars and clinicians using content validity index. To examine construct validity, a total of 175 caregivers from tertiary hospital setting in Korea participated in this study from December 2007 to May 2008. For the construct validity, factor analysis was utilized.

Results

The scale was composed of 32 items with four subscales: two negative appraisals (physical suffering and burden), one positive appraisal (maturation), and one neutral appraisal (social support pursuit). In this sample, the Cronbach's alpha for the entire scale was .84 indicating adequate reliability. However, Cronbach's alpha of subscales was varied.

Conclusion

Nurses and other healthcare professionals could use the EOLCAS to assess the experiences of EOL caregivers to understand their experience in the EOL and enhance their quality of life although psychometrics of EOLCAS shows limited findings.

Key Words:  advance care planning , caregivers

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PII: S1976-1317(10)60001-1

doi:10.1016/S1976-1317(10)60001-1

Asian Nursing Research
Volume 4, Issue 1 , Pages 1-9, March 2010

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