Asian Nursing Research
Volume 1, Issue 2 , Pages 116-124 , September 2007

Parenting Stress in Mothers of Children with Congenital Heart Disease

  • Sunhee Lee, RN, MSN

      Affiliations

    • PhD Candidate, College of Nursing, Yonsei University, Seoul, Korea
    • Corresponding Author InformationCorrespondence to: Sunhee Lee, RN, MSN, College of Nursing, Yonsei University, 134 Sinchon-dong, Seodaemun-gu, Seoul 120-752, Korea
  • ,
  • Ji-Soo Yoo, RN, PhD

      Affiliations

    • Professor, College of Nursing, Yonsei University, Seoul, Korea
  • ,
  • Il-Young Yoo, RN, PhD

      Affiliations

    • Professor, College of Nursing, Yonsei University, Seoul, Korea

References 

  1. Abidin RR . Parenting Stress Index: Short Form . Charlotteville, VA: Pediatric Psychology Press; 1990;
  2. Abidin RR . Parenting Stress index . Odessa, FL: Psychological Assessment Resources; 1995;
  3. Aytch LS , Hammond R , White C . Seizures in infants and young children: an exploratory study of family experiences and needs for information and support . The Journal of Neuroscience Nursing . 2001;33:278–285
  4. Boman K , Lindahl A , Bjork O . Diseaserelated distress in parents of children with cancer at various stages after the time of diagnosis . Acta Oncologica . 2003;42:137–146
  5. Carey LK , Nicholson BC , Fox RA . Maternal factors related to parenting young children with congenital heart disease . Journal of Pediatric Nursing . 2002;17:174–183
  6. Chessa M , DeRosa G , Pardeo M , Negura DG , Butera G , Giambetri A , et al.   What do parents know about the malformations afflicting the hearts of their children? . Cardiology in the Young . 2005;15:125–129
  7. Cheuk DKL , Wong SMY , Choi YP , Chau AKT , Cheung YF . Parents' understanding of their child's congenital heart disease . Heart . 2004;90:435–439
  8. Clare MD . Home care of infants and children with cardiac disease . Heart & Lung . 1985;14:218–222
  9. Davies S , Hall D . “Contact a family”: Professionals and parents in partnership . Archives of Disease in Childhood . 2005;90:1053–1057
  10. DeMaso DR , Beardslee WR , Silbert AR , Fyle DC . Psychological functioning in children with cyanotic heart defects . Journal of Developmental Behavioral Pediatrics . 1990;84:1881–1890
  11. Horner T , Liberthson R , Jellinek MS . Psychosocial profile of adults with complex congenital heart disease . Mayo Clinic Proceedings . 2000;75:31–36
  12. Kim, D. H. (1997). A comparative study of parenting stress between mothers of normal neonate and low birth weight neonate. Unpublished master's thesis, Yonsei University, Seoul, Korea.
  13. King G , Stewart D , King S . Organizational characteristics and issues affecting the longevity of self-help groups for parents of children with special needs . Qualitative Health Research . 2000;10:225–241
  14. Lee HJ . Congenital heart disease after childhood–experience of “Grown up Congenital Heart Clinic (GUCH Clinic)” . Korean Circulation Journal . 2001;31:537–541
  15. Lee H , Kim MH , Jung JW , Kim SH , Choi BY . Prevalence of congenital heart disease from the elementary student heart disease screening program . Korean Journal Preventive Medicine . 2001;34:427–436
  16. Linde LM . Psychiatric aspects of congenital heart disease . The Psychiatric Clinics of North America . 1982;5:399–406
  17. Linde LM , Rasof B , Dunn OJ , Rabb E . Attitudinal factors in congenital heart disease . Pediatrics . 1966;38:92–101
  18. Mattie-Luksic M , Javornisky G , DiMario FJ . Assessment of stress in mothers of children with severe breath-holding spells . Pediatrics . 2000;106:1–5
  19. Mishel MH . Parents' perception of uncertainty concerning their hospitalized child . Nursing Research . 1983;32:324–330
  20. Mishel MH . Reconceptualization of the uncertainty in illness theory . Journal of Nursing Scholarship . 1990;22:256–262
  21. Mishel MH . Uncertainty in illness scale manual . Chapel Hill, NC: University of North Carolina; 1997;
  22. Peterson C , Harbaugh BL . Children's and adolescents' experiences while undergoing cardiac catheterization . Maternal-Child Nursing Journal . 1995;23:15–25
  23. Sparacino PSA , Tong EM , Messias DKH , Foote D , Chelsia CA , Gilliss CL . The dilemmas of parents of adolescents and young adults with congenital heart disease . Heart & Lung . 1997;26:187–195
  24. Suh MH , Oh K . A study of well-being in caregiver for chronically ill family members . Journal of Korean Academy of Nursing . 1993;23:467–486
  25. Van Dongen-Melman JE , Pruyn JF , DeGroot A , Koot HM , Hahlen K , Verhulst FC . Late psychosocial consequences for parents of children who survived cancer . Journal of Pediatric Psychology . 1995;20:567–586
  26. Van Horn M , DeMaso DR , Gonzalez-Heydrich J , Ericson JD . Illness-related concerns of mothers of children with congenital heart disease . Journal of the American Academy of Child & Adolescent Psychiatry . 2001;40:847–854
  27. Weinert C . A social support measure: PRQ 85 . Nursing Research . 1987;36:273–277

PII: S1976-1317(08)60014-6

doi: 10.1016/S1976-1317(08)60014-6

Asian Nursing Research
Volume 1, Issue 2 , Pages 116-124 , September 2007