Asian Nursing Research
Volume 1, Issue 1 , Pages 23-34, June 2007

A Proposed Theoretical Framework Addressing the Effects of Informal Caregivers on Health-Related Outcomes of Elderly Recipients in Home Health Care

  • Eunhee Cho, PhD, MPH, MSN, RN

      Affiliations

    • Corresponding Author InformationCorrespondence to: Eunhee Cho, PhD, MPH, MSN, RN, Center for Health Outcomes and Policy Research, School of Nursing, University of Pennsylvania, 420 Guardian Drive, Philadelphia, PA 19104-6096, USA

Post-Doctoral Fellow, Center for Health Outcomes and Policy Research, School of Nursing, University of Pennsylvania, Philadelphia, USA

Article Outline

Purpose

The purpose of this review is to develop a theoretical framework addressing the effects of informal caregivers on health-related outcomes of elderly recipients in home health care.

Methods

The investigator a) reviewed theories and literature related to informal caregiving and health-related outcomes of elderly recipients, b) critiqued the strengths and limitations of these theories and literature for research in this area, and c) developed a new conceptual framework by deductively applying these theories and literature to the effects of informal caregivers on health-related outcomes of elderly recipients in home health care.

Results

Social network theories, social support theories, and the literature on informal caregiving are useful in understanding how informal caregivers affect the outcomes of elderly recipients in home health care. This review synthesizes these theories and literature into a new theoretical framework in order to fully address the effects of informal caregivers on health-related outcomes of elderly recipients in home health care.

Conclusion

The proposed theoretical framework suggests that health-related outcomes of elderly recipients are the result of interactions among types of informal caregivers, the nature of the caregiving relationship, caregiving as a function of such relationships, and the internal processes of the care recipient.

Key Words:  aged , caregiving , home health care , informal caregivers , social support

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References 

  1. Aneshensel CS , Pearlin LI , Levy-Storms L , Schuler RH . The transition from home to nursing home mortality among people with dementia . Journals of Gerontology Series B-Psychological Sciences & Social Sciences . 2000;55B:S152–162
  2. Archbold P . An analysis of parent-caring by women . Home Health Care Services Quarterly . 1982;3:5–25
  3. Archbold P , Stewart BJ , Greenlick MR , Harvath T . Mutuality and preparedness as predictors of caregiver role strain . Research in Nursing & Health . 1990;13:375–384
  4. Bakas T , Pressler SJ , Johnson EA , Nauser JA , Shaneyfelt T . Family caregiving in heart failure . Nursing Research . 2006;55:180–188
  5. Bowers BJ . Intergenerational caregiving: Adult caregivers and their aging parents . Advances in Nursing Science . 1987;9:20–31
  6. Bradley PJ . Family caregiver assessment. Essential for effective home health care . Journal of Gerontological Nursing . 2003;29:29–36
  7. Brodaty H , Green A , Koschera A . Metaanalysis of psychosocial interventions for caregivers of people with dementia . Journal of the American Geriatrics Society . 2003;51:657–664
  8. Cantor MH . Social care: Family and community support systems . Annals of the American Academy of Political & Social Science . 1989;503:99–112
  9. Cantor MH . Family and community: Changing roles in an aging society . Gerontologist . 1991;31:337–346
  10. Choi-Kwon S , Kim HS , Kwon SU , Kim JS . Factors affecting the burden on caregivers of stroke survivors in South Korea . Archives of Physical Medicine & Rehabilitation . 2005;86:1043–1048
  11. Chumbler NR , Grimm JW , Cody M , Beck C . Gender, kinship and caregiver burden: The case of community-dwelling memory impaired seniors . International Journal of Geriatric Psychiatry . 2003;18:722–732
  12. Cohen CA , Colantonio A , Vernich L . Positive aspects of caregiving: Rounding out the caregiver experience . International Journal of Geriatric Psychiatry . 2002;17:184–188
  13. Cohen S , Herbert TB . Health psychology: Psychological factors and physical disease from the perspective of human psychoneuroimmunology . Annual Review of Psychology . 1996;47:113–142
  14. In:  Cohen S ,  Underwood LG ,  Gottlieb BH editor. Social support measurement and intervention: A guide for health and social scientists . New York: Oxford University Press; 2000;
  15. Donaldson C , Tarrier N , Burns A . Determinants of carer stress in Alzheimer's disease . International Journal of Geriatric Psychiatry . 1998;13:248–256
  16. Friedman MM . Social support sources and psychological well-being in older women with heart disease . Research in Nursing & Health . 1993;16:405–413
  17. Given B , Wyatt G , Given C , Sherwood P , Gift A , DeVoss D , et al.   Burden and depression among caregivers of patients with cancer at the end of life . Oncology Nursing Forum Online . 2004;31:1105–1117
  18. Given BA , Given CW . Family caregiving for the elderly . Annual Review of Nursing Research . 1991;9:77–101
  19. Johnson C , Catalano D . A longitudinal study of family support to impaired elderly . Gerontologist . 1983;23:612–618
  20. Katz S , Ford AB , Moskowitz RW , Jackson BA , Jaffe MW . Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function . JAMA . 1963;185:914–919
  21. King AC , Atienza A , Castro C , Collins R . Physiological and affective responses to family caregiving in the natural setting in wives versus daughters . International Journal of Behavioral Medicine . 2002;9:176–194
  22. Lewis MA , Rook KS . Social control in personal relationships: Impact on health behaviors and psychological distress . Health Psychology . 1999;18:63–71
  23. Lieberman MA , Kramer JH . Factors affecting decisions to institutionalize demented elderly . Gerontologist . 1991;31:371–374
  24. Litwak E . Helping the elderly . New York: Guilford Press; 1985;
  25. Messeri P , Silverstein M , Litwak E . Choosing optimal support groups: A review and reformulation . Journal of Health & Social Behavior . 1993;34:122–137
  26. Nagatomo I , Akasaki Y , Uchida M , Tominaga M , Hashiguchi W , Takigawa M . Gender of demented patients and specific family relationship of caregiver to patients influence mental fatigue and burdens on relatives as caregivers . International Journal of Geriatric Psychiatry . 1999;14:618–625
  27. Nijboer C , Triemstra M , Tempelaar R , Mulder M , Sanderman R , van den Bos GA . Patterns of caregiver experiences among partners of cancer patients . Gerontologist . 2000;40:738–746
  28. Novak M , Guest C . Application of a multidimensional caregiver burden inventory . Gerontologist . 1989;29:798–803
  29. Phillips LR , Morrison EF , Chae YM . The QUALCARE Scale: Developing an instrument to measure quality of home care . International Journal of Nursing Studies . 1990;27:61–75
  30. Phillips LR , Morrison EF , Chae YM . The QUALCARE Scale: Testing of a measurement instrument for clinical practice . International Journal of Nursing Studies . 1990;27:77–91
  31. Pierce GR , Sarason IG , Sarason BR . General and relationship-based perceptions of social support: Are two constructs better than one? . Journal of Personality & Social Psychology . 1991;61:1028–1039
  32. Pinquart M , Sorensen S . Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis . Journals of Gerontology Series B-Psychological Sciences & Social Sciences . 2006;61:P33–45
  33. Pinquart M , Sorensen S . Helping caregivers of persons with dementia: Which interventions work and how large are their effects? . International Psychogeriatrics . 2006;18:577–595
  34. Robinson KM . Family caregiving: Who provides the care, and at what cost? . Nursing Economics . 1997;15:243–247
  35. Schulz R , Beach SR . Caregiving as a risk factor for mortality: The caregiver health effects study . JAMA . 1999;282:2215–2219
  36. Stroebe W , Stroebe M . The social psychology of social support . In:  Kruglanski AW editors. Social psychology: Handbook of basic principles . New York: Guilford Press; 1996;p. 597–621
  37. Swanson EA , Jensen DP , Specht J , Johnson ML , Maas M , Saylor D . Caregiving: Concept analysis and outcomes . Scholarly Inquiry for Nursing Practice . 1997;11:65–76
  38. Thoits PA . Multiple identities and psychological well-being: A reformulation and test of the social isolation hypothesis . American Sociological Review . 1983;48:174–187
  39. Uchino BN . Social support and physical health: Understanding the health consequences of relationships . New Haven: Yale University Press; 2004;
  40. Vitaliano PP , Scanlan JM , Krenz C , Schwartz RS , Marcovina SM . Psychological distress, caregiving, and metabolic variables . Journals of Gerontology Series B-Psychological Sciences & Social Sciences . 1996;51:P290–299
  41. Worcester MI . Family coping: Caring for the elderly in home care . Home Health Care Services Quarterly . 1990;11:121–185
  42. Yesavage JA , Brink TL , Rose TL , Lum O , Huang V , Adey M , et al.   Development and validation of a geriatric depression screening scale: A preliminary report . Journal of Psychiatric Research . 1982;17:37–49
  43. Zanetti O , Frisoni GB , Bianchetti A , Tamanza G , Cigoli V , Trabucchi M . Depressive symptoms of Alzheimer caregivers are mainly due to personal rather than patient factors . International Journal of Geriatric Psychiatry . 1998;13:358–367

PII: S1976-1317(08)60006-7

doi:10.1016/S1976-1317(08)60006-7

Asian Nursing Research
Volume 1, Issue 1 , Pages 23-34, June 2007